I think acceptance is the hardest part Obs, in a situation like that. If she's a determined person, it's very difficult,and very frustrating, to allow others to do the things you feel you should be doing yourself, but that determination is what gets you through all sorts of problems. Knocking back the perfectionism is always hard to achieve too. If her hubby can offer help and understanding, no matter how little it is, that'll ease the path a little. It takes time and patience - not always straightforward, that pair
It's a place where beautiful isn't enough of a word....
I live in west central Scotland - not where that photo is...
Your support of her will help enormously too. She'll have good days and bad, but as long as she keeps that determination, she'll get there. We never know what's waiting round that corner, do we?
It's a place where beautiful isn't enough of a word....
I live in west central Scotland - not where that photo is...
Afternoon all. Been AWOL as been decorating breakfast/family room for the last two days. Just finished so putting feet up between shower and nipping out for something for tea. Will be having pancakes as well as I love them. Brings memories of the lovely ones my Mum used to make - we would rush home from school and help make the batter.
Only 90% sure of the new paint colour as it looks slightly pink in some light - it is basically a beige, called ‘natural hessian’. We had a pastel green before, but fancied a change.
My friend was diagnosed with this about 10 years ago. She was referred to the local pain clinic and got lots of practical help .... eg the least painful way to get in/out of a car etc. She also got some equipment for helping her get out of bed, and a stool for the shower.
A couple of years on and she had to get a steroid jag in her hip .... her fibromyalgia symptoms completely disappeared overnight she could do all the things she used to be able to. However, they crept back in after about 10 days .... and within a month she was back to the original level of pain & symptoms. She told her consultant rheumatologist who realised she had been misdiagnosed, and actually had polymyalgia rheumatica. The consultant apologised and put her onto steroids ... she's been fine ever since and is slowly reducing the steroid dose. With luck she may eventually not need them. So, be worth your friend double checking they are sure it's fibro. ... the symptoms are very similar. My friend was only 48 when she originally fell ill .... too young for polymyalgia rheumatical according to the text books ..... which is why it wasn't considered at the time. Hope this is helpful. Bee x
Gardener and beekeeper in beautiful Scottish Borders
A single bee creates just one twelfth of a teaspoon of honey in her lifetime
Thanks Beewitched. She does have some form of arthritis already and had been on a 3 week prescribed cure for that when these symptoms started so could well be. She's been for all sorts of scans to eliminate other stuff and is about to be tested for the fibromyalgia which is the latest suspect.
I have had a very floppy afternoon. Lovely lunch at the catering school including mains of "parmentier au confit de canard" which turns out to be yummy and not something I'd ever have considered doing. Then a raid on an SM for some Oz Sauvignon Blanc cos I haven't yet found a French one I like and then a paint raid in the DIY. No way I can do an Aunty Rach and get a room done in just 2 days here! Too much prep and then all those strong colours to cover.
Best go and cook dinner I suppose - spag with simple spicy mushrooms and garlic.
No pancakes.
Vendée - 20kms from Atlantic coast.
"The price good men (and women) pay for indifference to public affairs is to be ruled by evil men (and women)."
Your friend's situation inspired me to change my signature quote, Obs (it's also very apt for my gardening 'style'). Hope she can find a way to manage her symptoms. I know a couple of people with it and both have managed to get to an equilibrium where most days are good and a few days are not. But the way they've done it is very different, a mixture of regular exercise and pain management for both but different intensity of exercise and very different drugs. Talking to others who are dealing with it is definitely a good thing, once she's over the shock of the diagnosis (and once she's sure it's true).
Gardening on the edge of Exmoor, in Devon
“It's still magic even if you know how it's done.”
I'm sorry about your friend, Obelixx, it's not something I know about though.
"Parmentier au confit de canard" is yummy, like cottage pie only with duck.
Don't seem to have had time to come here today. Went to a friend's sewing group this morning, did the weekly shop on the way home, heating man came (boiler is working at the moment), worked in the veg garden preparing 4 no dig beds. Then OH arrived back from Norfolk at 5pm.
As we had classic lemon and sugar pancakes on Candlemas Day, French style, we had Chinese pancakes with duck, salad and hoisin sauce for dinner. I make the pancakes, can't buy them here and I use "confit de canard" duck.
Dordogne and Norfolk. Clay in Dordogne, sandy in Norfolk.
Posts
Knocking back the perfectionism is always hard to achieve too. If her hubby can offer help and understanding, no matter how little it is, that'll ease the path a little.
It takes time and patience - not always straightforward, that pair
I live in west central Scotland - not where that photo is...
We never know what's waiting round that corner, do we?
I live in west central Scotland - not where that photo is...
Only 90% sure of the new paint colour as it looks slightly pink in some light - it is basically a beige, called ‘natural hessian’. We had a pastel green before, but fancied a change.
Hope you are all doing ok.
My friend was diagnosed with this about 10 years ago. She was referred to the local pain clinic and got lots of practical help .... eg the least painful way to get in/out of a car etc. She also got some equipment for helping her get out of bed, and a stool for the shower.
A couple of years on and she had to get a steroid jag in her hip .... her fibromyalgia symptoms completely disappeared overnight she could do all the things she used to be able to. However, they crept back in after about 10 days .... and within a month she was back to the original level of pain & symptoms. She told her consultant rheumatologist who realised she had been misdiagnosed, and actually had polymyalgia rheumatica. The consultant apologised and put her onto steroids ... she's been fine ever since and is slowly reducing the steroid dose. With luck she may eventually not need them.
So, be worth your friend double checking they are sure it's fibro. ... the symptoms are very similar. My friend was only 48 when she originally fell ill .... too young for polymyalgia rheumatical according to the text books ..... which is why it wasn't considered at the time.
Hope this is helpful.
Bee x
A single bee creates just one twelfth of a teaspoon of honey in her lifetime
I have had a very floppy afternoon. Lovely lunch at the catering school including mains of "parmentier au confit de canard" which turns out to be yummy and not something I'd ever have considered doing. Then a raid on an SM for some Oz Sauvignon Blanc cos I haven't yet found a French one I like and then a paint raid in the DIY. No way I can do an Aunty Rach and get a room done in just 2 days here! Too much prep and then all those strong colours to cover.
Best go and cook dinner I suppose - spag with simple spicy mushrooms and garlic.
No pancakes.
Your friend's situation inspired me to change my signature quote, Obs (it's also very apt for my gardening 'style'). Hope she can find a way to manage her symptoms. I know a couple of people with it and both have managed to get to an equilibrium where most days are good and a few days are not. But the way they've done it is very different, a mixture of regular exercise and pain management for both but different intensity of exercise and very different drugs. Talking to others who are dealing with it is definitely a good thing, once she's over the shock of the diagnosis (and once she's sure it's true).
“It's still magic even if you know how it's done.”
I'm sorry about your friend, Obelixx, it's not something I know about though.
"Parmentier au confit de canard" is yummy, like cottage pie only with duck.
Don't seem to have had time to come here today. Went to a friend's sewing group this morning, did the weekly shop on the way home, heating man came (boiler is working at the moment), worked in the veg garden preparing 4 no dig beds. Then OH arrived back from Norfolk at 5pm.
As we had classic lemon and sugar pancakes on Candlemas Day, French style, we had Chinese pancakes with duck, salad and hoisin sauce for dinner. I make the pancakes, can't buy them here and I use "confit de canard" duck.
will peep in from across the pond when I have wiffy ....but in the meantime, be good 🤪
Its wet here this morning ...
Gardening in Central Norfolk on improved gritty moraine over chalk ... free-draining.