I've just read Lily's article. That is just what I used to do when I was nursing the elderly. It's not really that hard, no lifting involved and do it slowly and carefully.
Dordogne and Norfolk. Clay in Dordogne, sandy in Norfolk.
Lyn, so sorry to hear that. I really wish I could help you. You must be exhausted.
Surely they could help you just 15mins a day. I really don't know what to say, its totally unbelievable that they won't help you in anyway. Take care of yourself too, lots of love, hugs and best wishes xx
Feel so bad for you Lyn, like the others, ive been there too.I know you are sooo tired and really dont have the energy for a big fight with the powers that be. you will get there, you are doing an amazing job, your mom couldnt ask for better x
Lyn its so this care thing. My wife is totally disabled and I get one and a half hours a day help and I have had to fight for that all the way.
Now I have just learnt that the council have cut the budget for care even further and if I want to keep the care we have I will have to find £400 per month we don't have that sort of money so not sure what we will do!!
I'm afraid to say it is a never ending battle but keep at it if you can.
I went at them with this and they did listen then.
I would draw you attention to The Court of Human Rights in Strasbourg ruling in 2014
"On 20 May 2014 the Court held unanimously that that there had been a violation of Ms M Article 8 rights under the European Convention on Human Rights to a private and family life, on the basis that the care reduction was not in accordance with domestic law at the time. This hinges on the fact that the local authority had communicated their decision to reduce the care package in a letter."
Not exactly my situation or yours I know but when you start quoting things it dose make them sit up
Good luck.
If you have a garden and a library, you have everything you need.
I know how to do it, but she is frightened and thinks she will fall, so far the nurse has turned her and I hold on to her for reassurance, then she can treat the area. we do the sheet together, they did put those nappies on but because of the soreness they said she was better free, just on the pad.
I dont know anyone around here, quite remote although only 5 or so miles from the surgery, you would think its was 50 by the way they go on!.
OH gone to work and she wouldn't like any other but a male nurse to see her 'bum and bits', she also doesnt complain so much if a trained person is here.
You know, I feel like giving her the whole lot of morphine, what is the point in 'care in the community' that they go on about.
Gardening on the wild, windy west side of Dartmoor.
Not much longer Lyn, please hang in there. make a cup of tea and have 10 mins for yourself, if theres a soggy sheet, then it will still be there when you are done, you are understandibly frazzled, this is a little blunt, but i hope you understand. Theres not much time left, stop trying to be perfect, just be there, as long as mum is comfortable and you stay sane, thats what matters x
Hi Lyn, I do understand your 'sense of holding it altogether' My mother had appalling treatment and neglect for the last six weeks of her life in a Brighton hospital. I was working full time, my marriage was in tatters and one of my children was on drugs but I just had to visit her every day. Every time I told people at work how dreadful the situation was they used to advise me what to do but doing something positive when you are on 'your knees' and then achieving nothing is soul destroying. I vowed to contact everyone in power when it was over but finally never did anything. I was totally wrung out.
What I did do several weeks later was write down everything that happened in my life at that time and I still have those papers at the bottom of a drawer. Occasionally I come across them and, 25 years on, usually shed a tear at how unjust life was then and wonder how I ever managed to get through the mess.
By now, you have probably forgotten what it is like to feel carefree and relaxed but I hope it does happen for you soon.
Posts
I've just read Lily's article. That is just what I used to do when I was nursing the elderly. It's not really that hard, no lifting involved and do it slowly and carefully.
Lyn, so sorry to hear that. I really wish I could help you. You must be exhausted.
Surely they could help you just 15mins a day. I really don't know what to say, its totally unbelievable that they won't help you in anyway. Take care of yourself too, lots of love, hugs and best wishes xx
Lyn its so this care thing. My wife is totally disabled and I get one and a half hours a day help and I have had to fight for that all the way.
Now I have just learnt that the council have cut the budget for care even further and if I want to keep the care we have I will have to find £400 per month we don't have that sort of money so not sure what we will do!!
I'm afraid to say it is a never ending battle but keep at it if you can.
I went at them with this and they did listen then.
I would draw you attention to The Court of Human Rights in Strasbourg ruling in 2014
"On 20 May 2014 the Court held unanimously that that there had been a violation of Ms M Article 8 rights under the European Convention on Human Rights to a private and family life, on the basis that the care reduction was not in accordance with domestic law at the time. This hinges on the fact that the local authority had communicated their decision to reduce the care package in a letter."
Not exactly my situation or yours I know but when you start quoting things it dose make them sit up
Good luck.
I know how to do it, but she is frightened and thinks she will fall, so far the nurse has turned her and I hold on to her for reassurance, then she can treat the area. we do the sheet together, they did put those nappies on but because of the soreness they said she was better free, just on the pad.
I dont know anyone around here, quite remote although only 5 or so miles from the surgery, you would think its was 50 by the way they go on!.
OH gone to work and she wouldn't like any other but a male nurse to see her 'bum and bits', she also doesnt complain so much if a trained person is here.
You know, I feel like giving her the whole lot of morphine, what is the point in 'care in the community' that they go on about.
Lyn ((hugs)) - ring your MP's office - what have you got to lose???
Gardening in Central Norfolk on improved gritty moraine over chalk ... free-draining.
What have I got to lose Dove, my sense of holding it together for one, I am out of fight.
Hi Lyn, I do understand your 'sense of holding it altogether' My mother had appalling treatment and neglect for the last six weeks of her life in a Brighton hospital. I was working full time, my marriage was in tatters and one of my children was on drugs but I just had to visit her every day. Every time I told people at work how dreadful the situation was they used to advise me what to do but doing something positive when you are on 'your knees' and then achieving nothing is soul destroying. I vowed to contact everyone in power when it was over but finally never did anything. I was totally wrung out.
What I did do several weeks later was write down everything that happened in my life at that time and I still have those papers at the bottom of a drawer. Occasionally I come across them and, 25 years on, usually shed a tear at how unjust life was then and wonder how I ever managed to get through the mess.
By now, you have probably forgotten what it is like to feel carefree and relaxed but I hope it does happen for you soon.
Gardening in Central Norfolk on improved gritty moraine over chalk ... free-draining.