Heartbreaking to hear what you are going through, Lyn.
My mum lived with us for the last six months of her life suffering from bladder cancer. Near the end I asked if the Macmillan nurses could call. They were brilliant and did all they could to keep mum comfortable. I remember one saying that I wished it could be all over and he was right. He made me cry every time he visited, not in front of mum of course. I think that was part of the healing process for me. The Macmillans are there for the families as well as the patients.
Verdun have a big hug, seems like you are now really clued up about dementia, I'm just sad that you had to learn the hard way x Keep telling Mum you love her she will hear you.
Dementia is not a disgrace just a damn vile disease.
I've been reading a lot of posts on the forum lately without doing much posting. I feel I have to post in here though with such courage and perseverance being shown by you guys in this thread.
Having lost my Mum to cancer back in 98 I can empathise, as can many others know doubt who have stood in your shoes. Please just know that you are all in my thoughts right now. This thread is truly humbling, it really is.
This is so moving, must be so difficult for Lyn. Have you contacted MacMillan nurses, Lyn? They were great when my father was dying, but he didn't have cancer, he had a brain haemorrhage and was in a coma. They were so helpful with their support for us when he was dying.
Verdun's Mum reminds me of my Mum when she got frail.
Dordogne and Norfolk. Clay in Dordogne, sandy in Norfolk.
Thank you for all your kind words. I feel a total fraud now though.
Mum was so scared about this mornings events and asked me what can we do.
I said to her to try and drink more to flush it out, she drunk 1·5 lts of water in one go, and kept walking up and down the hall.
The tube was blocked with 'debris' kept flushing and walking on and off all day, phoned the nurse who said it couldn't be the cancer flaring up so quickly, she thinks mum must have pulled the catheter out a bit in the night and thats what caused the bleeding, and we were doing the right thing. Anyway, eventually the bits came through the tube and by tonight its as clear as crystal!
I have fixed it tonight so she cant pull it in her sleep
The nurse has stuck a post it note on the doctors computer screen for him to ring me.
I felt so sorry for her though, she was so scared and trying to walk was making her absolutely breathless, but she was determined to do it, and she did!
What a day its been, never mind, it all seems ok for another day, I just hope I can cope when the time comes. I am sure I will.
Thank you all so much for your support, life is a bit of a yo yo now. Xx
Gardening on the wild, windy west side of Dartmoor.
Posts
So sorry to read that Lyn, thinking of you very best wishes, love and hugs xx
I don't usually post on this thread Lyn but feel moved by your predicament and am so sorry you are experiencing tremendous stress and sadness.
Hi Joyce, I remember having those thoughts many years ago with my parents.
Thank you, everybody.
They are exactly my thoughts Joyce, the poster is really nice matty.
Thank you Bekkie verdun dove SGL lesley and billie and anyone I have forgot. Xx
Heartbreaking to hear what you are going through, Lyn.
My mum lived with us for the last six months of her life suffering from bladder cancer. Near the end I asked if the Macmillan nurses could call. They were brilliant and did all they could to keep mum comfortable. I remember one saying that I wished it could be all over and he was right. He made me cry every time he visited, not in front of mum of course. I think that was part of the healing process for me. The Macmillans are there for the families as well as the patients.
Hugs to Mattie and Verdun too.
Verdun have a big hug, seems like you are now really clued up about dementia, I'm just sad that you had to learn the hard way x Keep telling Mum you love her she will hear you.
Dementia is not a disgrace just a damn vile disease.
I've been reading a lot of posts on the forum lately without doing much posting. I feel I have to post in here though with such courage and perseverance being shown by you guys in this thread.
Having lost my Mum to cancer back in 98 I can empathise, as can many others know doubt who have stood in your shoes. Please just know that you are all in my thoughts right now. This thread is truly humbling, it really is.
This is so moving, must be so difficult for Lyn. Have you contacted MacMillan nurses, Lyn? They were great when my father was dying, but he didn't have cancer, he had a brain haemorrhage and was in a coma. They were so helpful with their support for us when he was dying.
Verdun's Mum reminds me of my Mum when she got frail.
Thank you for all your kind words. I feel a total fraud now though.
Mum was so scared about this mornings events and asked me what can we do.
I said to her to try and drink more to flush it out, she drunk 1·5 lts of water in one go, and kept walking up and down the hall.
The tube was blocked with 'debris' kept flushing and walking on and off all day, phoned the nurse who said it couldn't be the cancer flaring up so quickly, she thinks mum must have pulled the catheter out a bit in the night and thats what caused the bleeding, and we were doing the right thing. Anyway, eventually the bits came through the tube and by tonight its as clear as crystal!
I have fixed it tonight so she cant pull it in her sleep
The nurse has stuck a post it note on the doctors computer screen for him to ring me.
I felt so sorry for her though, she was so scared and trying to walk was making her absolutely breathless, but she was determined to do it, and she did!
What a day its been, never mind, it all seems ok for another day, I just hope I can cope when the time comes. I am sure I will.
Thank you all so much for your support, life is a bit of a yo yo now. Xx