Just had a call from Devon Services, they are putting out to an agency, as he doesn't meet the criteria for free care. Or any night sittings. That, apparently is only for cancer patients.
So that's about 20.00 per hour. Worth it I suppose, I will get 3.5 hours per week.
The mattress did come, but we aren't managing with it too well, I put the back up to sit him up a bit, he slides down and ends up in a crumpled heap at the bottom.
Not easy to get him back up.
Gardening on the wild, windy west side of Dartmoor.
Lyn, does he have a hospital-type bed with a back that raises? Does it also 'bend in the middle'? If so, when you raise the back so he's propped up, bend the bed in the middle so his knees are raised a bit. That way he won't slide down. We learned that from the carers with Pa, and now Ma.
He does have an air-mattress to help prevent pressure sores doesn't he?
((hugs))
Gardening in Central Norfolk on improved gritty moraine over chalk ... free-draining.
Easier said that done Dove, he doesn't like the foot/knee bit up, so he just slides right down and I find home curled up at the bottom.
Vedun, how right you are, if he had cancer I could have had St Luke's Hospice like I had for mum for a while, they are only emergency, but helped for a week, then we went over to Rapid Responce team, alas, that is no more.
So now we have to pay an agency, but still only entitled to half hour a day, do you know, I feel like telling them what to do with it, it's only for a bed wash and sheet changing, surely I can manage that on my own. ( even then, if there is no one covering this area, I won't even get that)
They did suggest he can claim attendance allowance to help towards the care.
The physio girl just came with a new commode, she was disgusted by it all and told me to just lay it on with a trowel, I may get bit more help. I think I am to easy with managing by myself.
Dad just told me about someone that was claiming 200.00 per week because of a bad heart, then he was working as a lines man on the football pitch.
Something needs sorting out with this country that for sure.
Gardening on the wild, windy west side of Dartmoor.
So sorry to hear about your troubles Lyn, it sounds like a real ordeal.
I think a lot of it depends on what area you are in, care where I live is pretty good, I used to be a nurse but gave that up in my 40's to become a community podiatrist and see a lot of patients in similar circumstances receiving very good care at home.
I haven't read through the whole thing but have the Macmillain nurses been involved in his care?
Easier said than done, Dove, he doesn't like the foot/knee bit up, so just ends up in a crumpled heap down the bottom of the bed.
In these cases, help is no use at all, he won't slide down exactly at 9.30 when they call for half hour. It goes on all day.
Days and night mean nothing to him, it's all the same, he sleeps through the day, then is up through the night.
Lou, Macmillan nurses are a very rare breed down here, so much so that our District social care won't use them any more.
I nursed my mum last year with cancer and in the last stage, I asked for a whole month, if someone could just sit for one night, I was told.....it doesn't work like that, you cannot ask, we tell you when we have one available. And I never ever got one.
Needless to say, when collections came in all the money went to St
Luke's, I wouldn't give Macmillan a penny.
Doctor said he'd call again at the end of the week, so I am going to ask him for some tranquillisers of some sort. I don't want him on anything strong, as he's well aware of everything, still very clever in his mind, I don't want to turn him into a zombie on anti depressants, but maybe something mild.
It's very different, the care, in rural areas than in towns.
Gardening on the wild, windy west side of Dartmoor.
Lyn, you absolutely must apply for attendance allowance. Your Dad is entitled to it and it would help to buy him (and you) a bit more support. My husband had it when he was ill and he was nowhere near as bad as your Dad.
Posts
Lyn, you are amazing to be doing what you are for your dad. I admire you so much. My best wishes, thoughts and prayers are with you. x
So that's about 20.00 per hour. Worth it I suppose, I will get 3.5 hours per week.
The mattress did come, but we aren't managing with it too well, I put the back up to sit him up a bit, he slides down and ends up in a crumpled heap at the bottom.
Not easy to get him back up.
Lyn, 3.5 hours isn't a lot but it will be a help. OH used to keep falling out of bed until I put a fleecy sheet on. . . he doesn't slide off it.
Lyn, does he have a hospital-type bed with a back that raises? Does it also 'bend in the middle'? If so, when you raise the back so he's propped up, bend the bed in the middle so his knees are raised a bit. That way he won't slide down. We learned that from the carers with Pa, and now Ma.
He does have an air-mattress to help prevent pressure sores doesn't he?
((hugs))
Gardening in Central Norfolk on improved gritty moraine over chalk ... free-draining.
Easier said that done Dove, he doesn't like the foot/knee bit up, so he just slides right down and I find home curled up at the bottom.
Vedun, how right you are, if he had cancer I could have had St Luke's Hospice like I had for mum for a while, they are only emergency, but helped for a week, then we went over to Rapid Responce team, alas, that is no more.
So now we have to pay an agency, but still only entitled to half hour a day, do you know, I feel like telling them what to do with it, it's only for a bed wash and sheet changing, surely I can manage that on my own. ( even then, if there is no one covering this area, I won't even get that)
They did suggest he can claim attendance allowance to help towards the care.
The physio girl just came with a new commode, she was disgusted by it all and told me to just lay it on with a trowel, I may get bit more help. I think I am to easy with managing by myself.
Dad just told me about someone that was claiming 200.00 per week because of a bad heart, then he was working as a lines man on the football pitch.
Something needs sorting out with this country that for sure.
So sorry to hear about your troubles Lyn, it sounds like a real ordeal.
I think a lot of it depends on what area you are in, care where I live is pretty good, I used to be a nurse but gave that up in my 40's to become a community podiatrist and see a lot of patients in similar circumstances receiving very good care at home.
I haven't read through the whole thing but have the Macmillain nurses been involved in his care?
So sorry to hear that Lyn. Take care of yourself too, sending very best wishes, love and hugs xx
Easier said than done, Dove, he doesn't like the foot/knee bit up, so just ends up in a crumpled heap down the bottom of the bed.
In these cases, help is no use at all, he won't slide down exactly at 9.30 when they call for half hour. It goes on all day.
Days and night mean nothing to him, it's all the same, he sleeps through the day, then is up through the night.
Lou, Macmillan nurses are a very rare breed down here, so much so that our District social care won't use them any more.
I nursed my mum last year with cancer and in the last stage, I asked for a whole month, if someone could just sit for one night, I was told.....it doesn't work like that, you cannot ask, we tell you when we have one available. And I never ever got one.
Needless to say, when collections came in all the money went to St
Luke's, I wouldn't give Macmillan a penny.
Doctor said he'd call again at the end of the week, so I am going to ask him for some tranquillisers of some sort. I don't want him on anything strong, as he's well aware of everything, still very clever in his mind, I don't want to turn him into a zombie on anti depressants, but maybe something mild.
It's very different, the care, in rural areas than in towns.
Lyn, you absolutely must apply for attendance allowance. Your Dad is entitled to it and it would help to buy him (and you) a bit more support. My husband had it when he was ill and he was nowhere near as bad as your Dad.