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Am I posting too much?

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  • jo4eyes than you for your sugestions. i may try and talk to the doc when i next pop in but she always says at your age what do you expect. idid not know that it worked afte 2 weeks i can afford to try it for that time.

  • jo4eyesjo4eyes Posts: 2,058

    If you have a Boots advantage card, with sufficient points on it, you could always use them to 'buy' a small supply, say 30 days of a low dose just Glucosamine to see. Then virtually no cost to you at all! No guarentee re GP prescribing nowadays, but no harm in asking especially if you can prove that it works for you. Supermarkets also sell fairly cheaply, so Tesco point vouchers also an option.

    If it works for you, & no help from GP available, then 'on-line' suppliers are much cheaper, but I must admit to buying it as cheap as poss from Holland & Barrett. You often dont need the stronger dose that on-line suppliers offer, I find the majority of time that 500mg daily is sufficient. I do double up if have been strenuous outside, or when planning a lot of walking.

    BTW always tell a hospital or any medics if you do take it, especially if you are due any surgery as it can cause some problems with coagulation of the blood. That's how I know about the 2 week period to get it to work!

    Getting back on topic- yes I probably do post too much! Have learnt loads over the yrs on similar sites & hopefully helped people too. J.

  • Maud.. it is working you have to mix 1 teaspoon of clear honey dissovoled in hot water then add 1 desert spoon of cider vinegar and stir.. it tasts like hot lemsip with the the lemon.. keep off citrus fruits/foods and foods with critic acid in. and dairy products they aggrevate it.. eat chicken, turkey all fish and shell fish and lamb or veal only.. no other red meats or old meat..stay away from tomotoes at all times. and sugar it all acid that builds up and makes it worse.. use wholemeal flour and bread and i use "pure" butters they are good and skimmed milk or oat milk.. lovely with porridge.. which is also very good.

    i take cod livery oil and omega 3. and vitamin c as not citrus allowed..

    the book i got told about by my specialist is called "treating arthritis the drug free way" by Margaret Hills.. new edition out august htis year. she suffered and was near crippled by 36 years old and told never dance or cycle again.. she did this progarmme inthe books for 12 motnhs and has not looked back since..it has some meal menus in there.. must take calcium supplement to replace lack of dairy. arthritis is caused by diet.. to much acid in the body.. so have to remove it..

    do epsom slat baths or soaks.. these are very good.. do my hands in in for 15 mins in as hot as you can stand water and one cupful of the salts.. stretch and nbend the fingers etc for 15 mins.. then wrap in warm towel for 5 mins. do same for feet.. the bath is for whole body one bath hot water and 4 cupfuls of epsom salts.. for 20 mins.. get into a warm bed do not get cold.. do this 3 tims  a week.. it is so good..

    at first i thought so much hard work.. but it is sooo worht it to be in less pain..

  • sorry should be epsom salts bath.. sorry tired writing this today.. and it tastes of lemsip wihtout the lemon.. and the taste is worth the reward.. do it 3 times a day.. and get the book.

    been trying to get car back on road.. turned over and a blue white smoke came out of the back and filled the compartment too.. the previous owner had added double the amount of oil in it so have to burn it off now.. and it stinksimage

  • sorry to everyone for takin it off topic also.. but thought it be good to share some tips.. eat lots of fresh fruit.. peaches, apples, bananas.. nothing else. and loads of veg..

  • I take glucosamine and omega 3 everyday. Careful with my diet asone f the symptoms of fibro is having irritable bowel. On new medication for the tum which is helping. But i keep on plodding and causing trouble all the time. Always on the table that makes too much noise you getthe picture i hope. I swim twice a week at a local hydro pool which keeps me moving. You dont have to look far to find someone worse off than yourself. Apart from being very tired today ive had a good day.

  • Maud - I suffer from IBS, a side effect of having ME/CFS, I take acidophilus for this, it's just lactic acid bacteria, it's best taken with a glass of milk, or yoghurt, but if you're not having dairy than it will work, just not as well.  It has worked for me, I only tend to take it now when I've had an attack of IBS (not as often as before I had kids).  I don't think it's THAT expensive, and if it stops the awful pain you get with IBS it's worth it.

  • Gardeningfanatic - burning off the excess oil is NOT a good idea, it will get rid of the oil, as it leaves a sticky residue that can really mess up your engine.  Hubby is an engineer, and recommends dropping the oil (especially if the car has been stood for a while), and replacing.  You could do this fairly easily by removing the sump plug, make sure you've got an old roasting tin or something similar to catch it in.  The Haynes book of confusion is good for this (instructions on how to do it, not to catch oil).

    Blue/White smoke coming out of the exhaust can also be a sign that the engine has gone to the scrapyard in the sky.  Hope it's not that.

  • Mummy muddy paws, i started off with Me/cfs and then with all the probs with my back now have fibromyalgia, I now take buscapan as i was having a really bad time with the tum. How long have you had me?

  • Maud, I started having problems in 2003, but wasn't diagnosed with ME/CFS until 2005.  Thought I was going loopy until I started talking to a chap who's had it for ages, and I was thinking, yes, that happens to me, so does that, so does that.  Went back to my GP and he send me for loads more tests to rule everything else out, even went to a tropical medicine specialist, which made me laugh as I've never been out of the UK (I don't like heat, so I don't see the point in foreign holidays).

    So I've had it for going on 9 years now.  It IS getting better, I've become great at pacing and recognising the danger signs of doing too much.  I think I'm starting to recover at long last, as I'm having far more good days than bad ones.  The 'brain fog' I get when I've done too much I find hardest to deal with, I get very frustrated when I can't express myself. 

    I found the support group I was referred to by my GP was a great help, but I did go through a sort of mourning period for my old life - I was very energetic and sporty, riding bikes and learning to ride horses, aerobics and swimming a mile twice a week.  ALL that went, one by one I had to give up the things I enjoyed.  I was very bad when I had my first baby, sleeping at least 16 hours a day and in a wheelchair for the rest, I just didn't have the energy to walk anywhere!

    I 'm much better than I was, just time, patience and learning to live with it I guess.  Unless you have ME/CFS, you don't know what tired is.  I got VERY fed up with people saying 'Oh, I think I must have that.....' when you have ME, you KNOW you've got it.  It's not just doing too much and then feeling tired, it's waking up as tired as you went to bed!

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